Have you ever wanted to become involved with patient advocacy or research, but do not know how to start? On this episode*, Andi Byers interviews Jennifer Weaver and Cheryl Crow, who share highlights from their experiences as “Rheum Champions” with the Rheumatology Research Foundation.
Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling."
Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.
*This episode was originally recorded as part of the My Spoonie Sisters podcast.
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Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!