On this episode of the Arthritis Life Podcast, host Cheryl interviews Seth Ginsburg, co-founder of Creaky Joints and Global Healthy Living Foundation. Seth shares how being diagnosed with spondyloarthritis led him to found the nonprofit organization CreakyJoints as a college student.
Seth discusses the challenges and lessons learned from his condition, emphasizing the importance of self-advocacy and humor as coping mechanisms. He also reflects on the 25-year journey of Creaky Joints, which began as a simple idea to connect arthritis sufferers and has grown into a significant patient advocacy and support organization.
Cheryl and Seth also discuss the importance of patient voices in research and healthcare policy, the role of advocacy in improving healthcare systems, and the power of community and proper information. This episode highlights the power of advocacy, sharing our stories and remembering you are not alone in your arthritis journey!
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