Arthritis Life

The Power of Creativity and Storytelling in Alison’s Chronic Illness Journey

Episode Summary

On this episode, Alison shares her ups and downs of living with inflammatory bowel disease (IBD) and ankylosing spondylitis (AS) as a mom, teacher and writer. She and Cheryl reflect on how they talk to their children about chronic illness, and Alison shares the crucial role of creativity in her coping toolbox.

Episode Notes

Alison and Cheryl also explore the impact of the pandemic on rediscovering creative passions and the power of storytelling in raising awareness. Alison’s new children’s book, Kenzie’s Little Tree, is not only a meaningful read but also a way to support arthritis and chronic illness foundations.  

If you're newly diagnosed, this conversation offers reassurance, practical tips, and a reminder that you’re not alone in this journey. 

Episode at a glance:

• Alison’s Diagnosis Story: Alison shares how she got diagnosed with AS after the birth of her child
• Creative Outlets & Chronic Illness: How writing, reading, and creative hobbies help manage symptoms and mental well-being.
• Practical Comfort and Pain Relief Tools: Favorite small but effective tools like heating pads, cushions, and ergonomic adjustments.
• Navigating Life Post-Diagnosis: The emotional impact of an IBD and ankylosing spondylitis diagnosis and finding ways to adapt.
• The Power of Storytelling: How Alison’s book, Kenzie’s Little Tree, raises awareness and supports chronic illness communities.
• Finding Connection & Support: Encouragement for those newly diagnosed, emphasizing that they’re not alone in this journey.

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!