Arthritis Life
What’s it Like to be on Methotrexate for Autoimmune Arthritis? (Encore Episode)
Episode Summary
On this encore episode, Cheryl checks in with a panel of patients who’ve taken methotrexate for rheumatoid arthritis or psoriatic arthritis. This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?” Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate.
Episode Notes
They also reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.
Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.
Episode at a glance:
- Methotrexate and treatment plans: what’s changed and what’s stayed the same?
- Pregnancy and medication decisions: Jenny and Cheryl discuss how their pregnancies affected their treatments, as methotrexate is unsafe during pregnancy
- The impact of a supportive community: the panel reflects on how important it’s been to find others who “get it”
- The coexistence of joy and grief: the panel reflects on how important it is to make space for both joy and grief
- Coping toolbox: each panelists shares what’s in her coping toolbox, including reflections on how living “one day at a time” helps cope with unpredictability
- Balancing Chronic Illness and Identity: Some participants share the challenge of balancing their identity with chronic illness. They expressed the importance of finding a balance between addressing health needs and living a full life.
- Social Media and Mental Health: The discussion touched on the impact of social media on mental health. Participants shared their experiences of navigating online spaces, stressing the need to set boundaries and avoid being consumed by the negativity that can sometimes arise.
- Acceptance and Adaptation: The conversation delved into the journey of acceptance and adaptation to life with chronic illness. Participants shared personal strategies for navigating challenges, such as making choices that enable a better quality of life and adjusting plans based on energy levels
Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode Sponsors
Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!